陌生人见异状好心提醒 新生儿就医检查出罕病「改变终生」
<picture style="box-sizing: border-box;"><font face="宋体" size="4"> <img alt="新生儿林肯得了阿拉吉欧症候群,幸好经一位陌生急救员指出其黄疸现象,其母亲才下定决心带他去找出确实病因。(取材自「早安美国」影片截屏)" class=" lazyloaded" data-src="https://pgw.worldjournal.com/gw/photo.php?u=https://uc.udn.com.tw/photo/wj/realtime/2024/11/28/30987401.jpg&s=Y&x=0&y=0&sw=759&sh=506&sl=W&fw=800&exp=3600&q=75" src="https://pgw.worldjournal.com/gw/photo.php?u=https://uc.udn.com.tw/photo/wj/realtime/2024/11/28/30987401.jpg&s=Y&x=0&y=0&sw=759&sh=506&sl=W&fw=800&exp=3600&q=75" style="box-sizing: border-box; border-style: none; object-fit: contain; width: 800px; height: 533px;"></font></picture><figcaption style="box-sizing: border-box; line-height: 1.4; padding-top: 10px; padding-bottom: 10px; color: rgb(126, 126, 126); background-image: initial; background-position: initial; background-size: initial; background-repeat: initial; background-attachment: initial; background-origin: initial; background-clip: initial;"><font face="宋体" size="4">新生儿林肯得了阿拉吉欧症候群,幸好经一位陌生急救员指出其黄疸现象,其母亲才下定决心带他去找出确实病因。(取材自「早安美国」影片截屏)</font></figcaption><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"><font face="宋体" size="4"><span style="box-sizing: border-box; background-color: initial; color: rgb(126, 126, 126); text-decoration-line: none; border-bottom: 1px solid rgb(126, 126, 126); transition: color 0.3s linear, border 0.3s linear;">佛州</span><font color="#7e7e7e"><span style="box-sizing: border-box; border-bottom: 1px solid rgb(126, 126, 126); transition: color 0.3s linear, border 0.3s linear;">妈妈莎拉‧勒芙(Sarah Love)7月带一家六个小孩,包括只六周大的儿子去主题公园玩,幸运遇到一位路人,他告诉她男婴有黄疸,最好送大医院检查。经过医院检查后,证实男婴有阿拉吉欧症候群(Alagille syndrome),影响到肝脏心脏;勒芙表示,幸好巧遇贵人,才能让她得悉儿子有此基因异常。</span></font></font></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"><font face="宋体" size="4">「早安美国」(Good Morning America)<font color="#0061cc"><span style="box-sizing: border-box;">报导</span></font>,她们全家出去玩的时候,有个不认识的男子一直在看她的男婴林肯,而她一时也没想太多。但后来她走经该男子,男子请她停下来,自介说他是第一反应急救员,注意到林肯的黄疸现象很重,他不想惊扰到她们一家,只是认为把林肯送医院检查一下更好。陌生男子谈到自己是邻近郡区的消防员,但没有透露姓名。</font></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"><font face="宋体" size="4">勒芙表示,她不但没因男子谈论林肯的情况而惊慌,反而心里更有底,因为对方态度诚恳友善,而他讲的话,也证实她注意到的现象。</font></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"><font face="宋体" size="4">勒芙说,林肯出生以来黄疸就很重,她与那位第一反应急救员交谈之后便与儿科诊所联系,诊所建议她带林肯到地区医院做血液检查。</font></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"><font face="宋体" size="4">地区医院医生们检查之后,建议转诊到专门的奥兰多「尼莫尔斯儿童医院」(Nemours Children's Hospital)。林肯在该院再做检查,做了肝脏活检,甚至经历了几次误诊,最后才收到改变一生的确诊报告。就在7月30日、遇到陌生男士将近四周之后,林肯确诊罹患阿拉吉欧症候群;国家医学图书馆(National Library of Medicine)创设的「医学加」(MedlinePlus)在线医学服务指出,阿拉吉欧症候群这种遗传失常主要影响到肝脏及心脏。</font></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"><font face="宋体" size="4">据知,罹患阿拉吉欧症候群的生理迹象有很难增重、眼睛深陷,脸颊尖而小。</font></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"><font face="宋体" size="4">诊断出林肯罹患阿拉吉欧症候群的尼莫尔斯医院肠胃学家高梅兹(Roberto Gomez)表示,按林肯的病情,终生都要接受营养学家指示,以协助治疗维他命的欠缺,还要服用几种药物。</font></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"><font face="宋体" size="4">勒芙表示,她分享出这个故事,是想提醒大家对阿拉吉欧症候群的了解,另希望找到那位叫住她、谈林肯病征的消防员并感谢他,因为他,最后才得知林肯确实得到什么病,而帮助了她们一家人。</font></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><p style="box-sizing: border-box; letter-spacing: 1px; margin-bottom: 20px; line-height: 1.75; color: rgb(34, 34, 34); word-break: break-word;"></p><div class="embedded-content" style="box-sizing: border-box; margin-bottom: 20px; color: rgb(0, 0, 0); margin-inline: auto; 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